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Job overview

The post holder will work within the Neurology team, primarily caring for a range of children with Neuromuscular and Inherited White Matter Disorders, taking on responsibility for these specific groups of children within the service, along with other members of the team. 

There will be some elements of cross cover for specialist groups within the service if required. 

The post holder will work closely with other CNS members within the team to ensure continuity of a quality service for all patients and their families. This involves advice to Community teams, schools, hospices and networking with other service that support patients. 

Main duties of the job

• Be able to practice autonomously within the remit of their defined caseload of Neuromuscular and Inherited White Matter Disorders 
• Supporting patients in between clinic appointment and being the primary point of access for patients, acting as source of initial specialist advice and resources 
• Provide effective nursing leadership, expertise and support to teams/wards and departments that may require input to provide high quality care to children and their families 

• Co-ordinate the liaison with other agencies, including education and relevant patient support groups 
• Promote an innovative and progressive attitude to the continual improvement of patient care through research and evidence based practice. 
• Use measurable outcomes for safety, patient experience and service efficiency. 
• Develop and update clinical guidelines
• Maintain own professional development and mandatory training, identifying learning needs in relation to specialist area of practice. 
• Participate in National and International events in order to further National and International knowledge and share best practice. 
• Work collaboratively with other centres to promote best practice for Metabolic Disorders, improve education and teaching for relevant other professionals where required
• Liaise with NHS England and HSS to develop and implement guidelines
• Raise awareness of rare disorders and be an active member of relevant rare disease groups 

Working for our organisation

Birmingham Women's and Children's NHS Foundation Trust is the first of its type in the UK. Our Trust was formed in February 2017 to drive forward our commitment to provide the highest quality, world-class physical and mental health care for our women, children and families. Uniting our hospitals means more seamless care; more investment to make greater advances in our specialist treatment and world-leading neo-natal and fetal work. Importantly, it also gives us a greater voice in shaping the future of family-centred care.

Birmingham Children's Hospital is a UK leading specialist paediatric centre with an international reputation in several areas.

Birmingham Women's Hospital is one of two dedicated women's hospitals in the UK, with the busiest single site maternity unit, delivering more than 8,200 babies a year offering a full range of gynaecological, maternity and neonatal care.

Forward Thinking Birmingham (FTB) Mental Health Services are a unique, innovative community and inpatient mental health partnership. Alongside partners FTB offers care pathways of mental health assessment and treatment for young people aged 0-25 years old.

Our Trust is committed to creating the best place to work. We believe in promoting and enhancing inclusion, diversity and equality and encourage applications from all areas of the community, who meet the criteria for the role, regardless of age, gender identity, disability, race, religion or sexual orientation.